ME/CFS stories

A Poem about ME/CFS: Missing steps – Diane Levy-Hellig

  MISSING STEPS by Diane Levy-Hellig “I became ill with ME/CFS in 1983. Missing now for over 30 years. Missing from my arts and education career […]

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MORE Stories of people reached by the Foundation

Retha used to love working and studying, she fell ill at 36 and now 14 years later are primarily housebound, she misses a career, wearing nice […]

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A few stories of people with ME/CFS reached by the Foundation

A few stories of people with ME/CFS reached by the Foundation ME/CFS is solitary confinement; missing out on life, living in isolation often in severe financial […]

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MILLIONS MISSING CAMPAIGN – 27 SEPTEMBER 2016

MEDIA ADVISORY FOR:  Tuesday, September 27, 2016 CONTACT:  Brett Abrams | +1-516-841-1105 | brett@unbendablemedia.com   09/27: Thousands Protest in 24 Cities Worldwide Demanding Support for Patients […]

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Whitney Dafoe’s heartbreaking story

This article was written by photographer, Whitney Dafoe, eight years into his battle with ME/CFS. Unfortunately Whitney’s condition has deteriorated significantly and he can no longer […]

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