The ME CFS Foundation South Africa

Covid-19

Coronovirus and ME/CFS 1 June 2020

Coronavirus and ME – Simplified facts (Emerge Australia https://www.emerge.org.au/blog/coronavirus-and-me-simplified-facts Many people with ME/CFS and other vulnerable communities in Australia continue to be concerned about the short and long-term impacts of COVID-19. Emerge Australia recognises that people with ME/CFS and other chronic illnesses are at higher risk of infection and have a valid reason for caution …

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Cerebral Micro-Structural Changes in COVID-19 3 Aug 2020 Patients – An MRI-based 3-month Follow-up Study

Cerebral Micro-Structural Changes in COVID-19 Patients – An MRI-based 3-month Follow-up Study https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370%2820%2930228-5/fulltext 3 Aug 2020  Increasing evidence supported the possible neuro-invasion potential of SARS-CoV-2. However, no studies were conducted to explore the existence of the micro-structural changes in the central nervous system after infection. We aimed to identify the existence of potential brain micro-structural …

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Multidisciplinary collaborative consensus guidance statement on the assessment and treatment of fatigue in postacute sequelae of SARS-CoV-2 infection (PASC) patients

Multidisciplinary collaborative consensus guidance statement on the assessment and treatment of fatigue in postacute sequelae of SARS-CoV-2 infection (PASC) patients https://onlinelibrary.wiley.com/doi/10.1002/pmrj.12684?fbclid=IwAR32_-l_Q6UWebhVTfAVAjLN6d6Ny5UjVLk7Hygc7nGfmljGnEu4-1pLX_A Large numbers of individuals who have been infected with SARS-CoV-2, the virus responsible for COVID-19, continue to experience a constellation of symptoms long past the time that they have recovered from the acute stages …

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Webinar on Long Covid -Session I–Long Covid: What Do We Know So Far?

Session I–Long Covid: What Do We Know So Far? Solve MECFS – Dr. Nisreen Alwan and Dr. Natalie Lambert Some people never recovered from Covid-19 and patient-led groups and academics are now studying Long Covid. How do we consolidate and share what we know so we can uncover causes and treatments more rapidly? Collaboration begins …

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“A Huge Problem and Major Crisis”: Avindra Nath on Long COVID at the IACFS/ME 2021 Conference

“A Huge Problem and Major Crisis”: Avindra Nath on Long COVID at the IACFS/ME 2021 Conference A huge problem and major crisis -(click here to read the full article) “A Huge Problem and Major Crisis”: Avindra Nath on Long COVID at the IACFS/ME 2021 Conference “We have a huge problem and a major crisis on …

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Drs Nina Muirhead and David Strain on ME/CFS, Long Covid and the harm of exercise

Interview with Drs Nina Muirhead and David Strain on ME/CFS, Long Covid and the dangers of exercise BBC Radio 4: Woman’s Hour – Dr Nina Muirhead and Dr David Strain Transcript of the Interview Woman’s Hour Presenter  Some Tweets that come in and in an email entitled ‘I don’t know why I bother’. Aylssa wrote into Woman’s Hour out asking for us …

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Long Covid in Children and Teenagers

‘I didn’t have the energy to move my arms’: Teenagers struggling with long Covid Youths with mild initial infections are experiencing confounding, sometimes debilitating issues Sun, Aug 15, 2021, 06:01Pam Belluck, Sirin Kale Photo above:  Dr. Jane Newburger speaks to Sierra Trudeau, and her mother, Heather at Boston Children’ss Hospital. Photograph: Maddie Malhotra/The New York Times   Will Grogan stared …

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Long Covid and ME/CFS

The Big Merge? Are Long COVID and ME/CFS Hypotheses Meshing? by Cort Johnson | Jul 29, 2021 The Gist In June 2020, researchers proposed that the renin-angiotensin-aldosterone system had become discombobulated in COVID-19, and that high Ang II levels were causing damage to the blood vessels and the mitochondria. Despite the fact that high Ang …

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We already know enough to avoid making the same mistakes again with Long Covid

Based on experience with past coronaviruses, the emerging challenge of prolonged symptoms after infection with the novel coronavirus 2019 (SARS-CoV-2) is unsurprising. Data from a large international web-based patient survey indicate substantial symptom overlap between long COVID and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) at 6 months following the onset of first symptoms, including three quarters of participants suffering from fatigue and postexertional malaise, and over half with cognitive dysfunction. Apparent similarities between the presentations of long COVID and ME/CFS suggest that we may apply what we have learned from ME/CFS to long COVID.