The ME CFS Foundation South Africa

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New tool from Open Medicine Foundation to help educate your personal communities

https://www.omf.ngo/social-shareables/?sm_guid=NDU0OTAyfDMyNzUxNDE1fC0xfG1lY2Zzc2Fmb3VuZGF0aW9uQGdtYWlsLmNvbXw0NDcyMjkzfHwwfDB8OTE1MDg4MTF8OTc4fDB8MHx8NDQxNjg40 As per Open Medicine Foundation website: “Use our new Social Shareables page to download educational graphics about ME/CFS, Fibromyalgia, Long COVID, and Chronic Lyme Disease and share them on social media. The steps are easy: click on each image to download and post directly to Instagram, Twitter, and/or Facebook! You can also follow OMF …

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Comparing ME/CFS with Long Covid October 2021

https://meassociation.org.uk/2021/10/iacfs-me-conference-dr-leonard-jason-on-covid-19-symptoms-over-time-comparing-long-haulers-to-me-cfs/ The 2nd Virtual Scientific Conference for the International Association for Chronic Fatigue Syndrome/ Myalgia Encephalomyelitis was held on the 19th – 21st August 2021 (streamed on zoom). The conference promoted unpublished data and included both clinicians and biomedical researchers.  The talks were grouped into different sections, including the longer 45 minute talks in the Professional Workshops and shorter talks covering topics of infectious diseases, immunology and …

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Fibromyalgia may be a condition of the immune system – 1 July 2021

Fibromyalgia may be a condition of the immune system not the brain – study – 1 July 2021 The findings, published in the Journal of Clinical Investigation, challenge the widely held view that the condition originates in the brain Photograph: Manjurul Haque/Alamy Stock Photo Fibromyalgia – a poorly understood condition that causes widespread pain throughout …

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Fibromyalgia Likely a Response to Nerve-Sensitizing Antibodies – 2 July 2021

Fibromyalgia Likely a Response to Nerve-Sensitizing Antibodies https://www.technologynetworks.com/neuroscience/news/fibromyalgia-likely-a-response-to-nerve-sensitizing-antibodies-350447?fbclid=IwAR1QWeTAgNiyWTTc7hlLeC7SQ9qH1-3bIaGTE62kQovyBnzWpv_xY3YHmpI New research from the Institute of Psychiatry, Psychology & Neuroscience (IoPPN) at King’s College London, in collaboration with the University of Liverpool and the Karolinska Institute, has shown that many of the symptoms in fibromyalgia syndrome (FMS) are caused by antibodies that increase the activity of pain-sensing …

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Severy and Very Severe ME

Severe and Very Severe ME https://www.dialogues-mecfs.co.uk/films/severeme/?fbclid=IwAR2axZH-u3a87tj2YEHI-3FrndZINDWtXHvWtchYDsK45Fi_F4tOoaiP9aw Dialogues for a neglected illness or Dialogues for ME/CFS: Severe or very Severe ME. “The collection of videos covers a variety of topics, giving a multi-faceted understanding of the disease from the perspectives of medical professionals, exercise scientists, and research professionals specialising in ME/CFS.”  Severely ill ME/CFS patients are by definition …

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Redox imbalance links COVID-19 and myalgic encephalomyelitis/chronic fatigue syndrome – August 2021

ABSTRACT LINK TO ARTICLE Although most patients recover from acute COVID-19, some experience postacute sequelae of severe acute respiratory syndrome coronavirus 2 infection (PASC). One subgroup of PASC is a syndrome called “long COVID-19,” reminiscent of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). ME/CFS is a debilitating condition, often triggered by viral and bacterial infections, leading to …

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The most alarming problem about Long Covid – Sept 2021

https://unchartedterritories.tomaspueyo.com/p/long-covid-chronic-fatigue-syndrome?s=09&fbclid=IwAR0CrBP9raL_vwYgMmb864WGoJ2vAXz4ymDWb9h3iUKXwPI8Dwv3qvr_QwA The main problem with Long COVID is its complexity: dozens of symptoms, different causes, different treatments, vaccine protection, Delta variant, age impact, gender impact, evolution over time… This complexity is crippling. We think “Hmmm Long COVID is bad but how bad? I don’t know… Maybe we should avoid it? But how careful should we …

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From Harm to Help

It is incredibly important not to harm ME/CFS patients. This is an excellent presentation by m.e.awareness.nz .