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From Harm to Help

It is incredibly important not to harm ME/CFS patients. This is an excellent presentation by m.e.awareness.nz .

https://meassociation.org.uk/2021/09/dr-phil-hammond-on-long-covid-lessons-learnt-from-me/

https://meassociation.org.uk/2021/09/dr-phil-hammond-on-long-covid-lessons-learnt-from-me/ The latest issue of Private Eye has an article from Dr Phil Hammond on how the experience of treating people with ME/CFS can inform how to best approach those with Long COVID. There are quotes from Dr Muirhead & Dr Marsh. Extracts are shown below. ExtractsInitially, (NICE Long COVID definition) listed a short number …

https://meassociation.org.uk/2021/09/dr-phil-hammond-on-long-covid-lessons-learnt-from-me/ Read More »

Webinar on Long Covid -Session I–Long Covid: What Do We Know So Far?

Session I–Long Covid: What Do We Know So Far? Solve MECFS – Dr. Nisreen Alwan and Dr. Natalie Lambert Some people never recovered from Covid-19 and patient-led groups and academics are now studying Long Covid. How do we consolidate and share what we know so we can uncover causes and treatments more rapidly? Collaboration begins …

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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management ME CFS Diagnosing and Treating Aug 2021 Mayo Clinic US Clinitian Coalition  Despite myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) affecting millions of people worldwide, many clinicians lack the knowledge to appropriately diagnose or manage ME/CFS. Unfortunately, clinical guidance has been scarce, obsolete, or potentially harmful. Consequently, up to 91% …

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“A Huge Problem and Major Crisis”: Avindra Nath on Long COVID at the IACFS/ME 2021 Conference

“A Huge Problem and Major Crisis”: Avindra Nath on Long COVID at the IACFS/ME 2021 Conference A huge problem and major crisis -(click here to read the full article) “A Huge Problem and Major Crisis”: Avindra Nath on Long COVID at the IACFS/ME 2021 Conference “We have a huge problem and a major crisis on …

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Drs Nina Muirhead and David Strain on ME/CFS, Long Covid and the harm of exercise

Interview with Drs Nina Muirhead and David Strain on ME/CFS, Long Covid and the dangers of exercise BBC Radio 4: Woman’s Hour – Dr Nina Muirhead and Dr David Strain Transcript of the Interview Woman’s Hour Presenter  Some Tweets that come in and in an email entitled ‘I don’t know why I bother’. Aylssa wrote into Woman’s Hour out asking for us …

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Long Covid in Children and Teenagers

‘I didn’t have the energy to move my arms’: Teenagers struggling with long Covid Youths with mild initial infections are experiencing confounding, sometimes debilitating issues Sun, Aug 15, 2021, 06:01Pam Belluck, Sirin Kale Photo above:  Dr. Jane Newburger speaks to Sierra Trudeau, and her mother, Heather at Boston Children’ss Hospital. Photograph: Maddie Malhotra/The New York Times   Will Grogan stared …

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