Could microclots help explain the mystery of long Covid? From The Guardian, on the work of Resia Pretorius: One of the biggest failures during the Covid-19 pandemic is our slow response in diagnosing and treating long Covid. As many as 100 million people worldwide already suffer from long Covid. That staggering number will eventually be […]
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Long Covid & ME – symptoms From BBC.com: More than a million people in the UK are suffering from long Covid, with fears the number could rise due to the Omicron variant. Many patients say they only had a mild initial infection but it went on to ruin their health, social lives and finances. READ
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Long COVID or Post-acute Sequelae of COVID-19 (PASC): An Overview of Biological Factors That May Contribute to Persistent Symptoms https://www.frontiersin.org/articles/10.3389/fmicb.2021.698169/full Amy D. Proal1 and Michael B. VanElzakker1,2* 1PolyBio Research Foundation, Kenmore, WA, United States 2Division of Neurotherapeutics, Massachusetts General Hospital, Harvard Medical School, Boston, MA, United States The novel virus severe acute respiratory syndrome coronavirus
Long Covid: An overview of biological factors – June 2021 Read More »
The new NICE guidelines on ME/CFS “We are delighted that the new NICE guideline on ME/CFS has been published. Doctors with M.E. considers the launch of this guideline to be a watershed moment in the history of ME/CFS medical care in the UK, with implications that extend to those Long Covid (PASC) patients who also meet ME/CFS diagnostic
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OCTOBER 2021 FUNDRAISER 5 DAYS LEFT!!IF YOU CAN’T DONATE KINDLY SHARE FROM THE ME CFS FOUNDATION SOUTH AFRICA’S FABCEBOOK PAGE#event #awareness #invisibleillnesses #pwME #LongCovid #MillionsMissing #fundsneeded #advocating #spooniesEXCELLENT OPPORTUNITY FOR REACHING PATIENTS, ADVOCATING FOR ME AND LONG COVID IN CAPE TOWN! FUNDS NEEDED Follow Us Facebook Twitter Youtube Instagram Linkedin More Posts: FUNDRAISER OCTOBER 2021
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https://www.omf.ngo/social-shareables/?sm_guid=NDU0OTAyfDMyNzUxNDE1fC0xfG1lY2Zzc2Fmb3VuZGF0aW9uQGdtYWlsLmNvbXw0NDcyMjkzfHwwfDB8OTE1MDg4MTF8OTc4fDB8MHx8NDQxNjg40 As per Open Medicine Foundation website: “Use our new Social Shareables page to download educational graphics about ME/CFS, Fibromyalgia, Long COVID, and Chronic Lyme Disease and share them on social media. The steps are easy: click on each image to download and post directly to Instagram, Twitter, and/or Facebook! You can also follow OMF
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https://meassociation.org.uk/2021/10/iacfs-me-conference-dr-leonard-jason-on-covid-19-symptoms-over-time-comparing-long-haulers-to-me-cfs/ The 2nd Virtual Scientific Conference for the International Association for Chronic Fatigue Syndrome/ Myalgia Encephalomyelitis was held on the 19th – 21st August 2021 (streamed on zoom). The conference promoted unpublished data and included both clinicians and biomedical researchers. The talks were grouped into different sections, including the longer 45 minute talks in the Professional Workshops and shorter talks covering topics of infectious diseases, immunology and
Comparing ME/CFS with Long Covid October 2021 Read More »
Fibromyalgia may be a condition of the immune system not the brain – study – 1 July 2021 The findings, published in the Journal of Clinical Investigation, challenge the widely held view that the condition originates in the brain Photograph: Manjurul Haque/Alamy Stock Photo Fibromyalgia – a poorly understood condition that causes widespread pain throughout
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Fibromyalgia Likely a Response to Nerve-Sensitizing Antibodies https://www.technologynetworks.com/neuroscience/news/fibromyalgia-likely-a-response-to-nerve-sensitizing-antibodies-350447?fbclid=IwAR1QWeTAgNiyWTTc7hlLeC7SQ9qH1-3bIaGTE62kQovyBnzWpv_xY3YHmpI New research from the Institute of Psychiatry, Psychology & Neuroscience (IoPPN) at King’s College London, in collaboration with the University of Liverpool and the Karolinska Institute, has shown that many of the symptoms in fibromyalgia syndrome (FMS) are caused by antibodies that increase the activity of pain-sensing
Fibromyalgia Likely a Response to Nerve-Sensitizing Antibodies – 2 July 2021 Read More »
Severe and Very Severe ME https://www.dialogues-mecfs.co.uk/films/severeme/?fbclid=IwAR2axZH-u3a87tj2YEHI-3FrndZINDWtXHvWtchYDsK45Fi_F4tOoaiP9aw Dialogues for a neglected illness or Dialogues for ME/CFS: Severe or very Severe ME. “The collection of videos covers a variety of topics, giving a multi-faceted understanding of the disease from the perspectives of medical professionals, exercise scientists, and research professionals specialising in ME/CFS.” Severely ill ME/CFS patients are by definition
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